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lAbout 30,000 children and adults in the U.S have cystic fibrosis, They are expected to live to their 30’s, 40’s and beyond.
The cause of cystic fibrosis is genetics. Each time a carrier has a child the chances are: 25% the child will have cystic fibrosis, 50% the child will be a carrier but not have the disease, 25% the child will not be a carrier or have the disease.
CF is most common among Caucasians and Ashkenazi Jews. One in 25 people of European descent carry a gene for CF.
A common test for cystic fibrosis is the sweat test. It measures the concentration of salt in a persons sweat. High levels indicate CF.
Some symptoms are persistent coughing, frequent lung infection, poor growth/weight gain, greasy stools, and very salty skin.
Typically, a lung transplantation is needed as CF worsens. Today, a lot more tools and information are available to help patients than ten years ago, but further research is necessary and a cure has not been reached.
